Second Mom Love

My husband is playing loud, peppy, music on the Amazon Echo, the 12-year old is trying to comfort me with talking, but what I need is silence. Today has taken a sharp turn for the worse. That day has come. It’s the day I knew was coming for a very long time, but I pushed it to the back of my mind. The day I have to prepare to say goodbye to someone I love. I guess I am lucky, at least I get to say goodbye.

She did not give birth to me, I did not live in her home, I did not give her snarky, teenage lip, but she is still my mother. She’s had more influence on my life than she’ll ever know. She gave me plenty of advice when I was younger, a reprimanding when necessary, a hug when needed. Without saying a word she has taught me to be carefree whenever possible, and that worrying wasn’t something to waste time on. She taught me that kids running in and out of your house are a blessing, and the more the merrier. That if your best friend’s six-year old daughter shows up at your door looking for one of those yummy yellow apples you always have in your refrigerator, invite her in for one. She’s taught me so much that it’s hard to separate it from what I learned from my other second mom, or my actual mother.

There were three of us. Families that lived on the same street in a time when kids were outside playing until dusk.  Between all three families there was someone for everyone to play with. Mrs.Ps kids were my brother and sister’s age. My other second mom, Mrs. E., had kids that were my sister and my age. The youngest, Lynn, has been my best friend since she was born the year after me.

They called themselves The Three Musketeers. They did everything together. Every week they would go bowling. They would throw all nine kids into the back of an old “Woody” station wagon and head to the local alley. We would go to the in-building daycare while they played a few games. They only left a kid once, and only for a few minutes, but lesson learned to count before leaving.

Along with the other neighborhood kids, we could always be heard and seen hanging out on the block after school, on the weekend, or on a hot summer day. I remember once when we had  a massive rain storm,  Mrs. P’s kids pulled out the fishing boat, and we rowed around in the flooded ditch. It was the highlight of the year on our street, at least for us kids.

Eventually all three families moved, and we had to stay in touch from afar. Same state, same county, different cities. We visited plenty, but no more walking down the street for a yellow apple for me. Even later still, my family was the only one left in the state, but no matter how far apart or how busy our lives got as we grew older, the bonds have remained strong. They are my family. They always will be.

One of my mommies is leaving this Earth soon and I’m not ready. I never will be. I thank God that He put her in my life though. She will always be a part of me, and always have a piece of my heart.

 

“How Fast Are You Going?”

Yesterday my parents and I were on our way home from the hospital after my mom’s major back surgery two weeks ago, and a subsequent rehab stint.  She was sitting in the front passenger seat, and due to restrictions from the surgeon, could not lean over to see the speedometer. My mom likes to have control of every situation. She is a worrier. As we were heading down the expressway towards their home she patted my leg and asked me, for the second time in 5 minutes, “How fast are you going?”  I was not speeding and there was no clear reason why she was asking, but she is my mother, and I have known her all my life.

After spending two weeks sitting in hospital rooms for long hours, making special meals due to her restricted diet and incessant worrying, and more time with my strong-willed mother than I am used to, I was reaching my limit.  In the end, that comment in the car was a reminder for me. I have seen how stress affects her and promised myself years ago that I would not do that to myself. Life is too short to sweat the small stuff. Appreciate what you have. Look for the positive side of everything. Find  beauty in the world.

My parents are only in their seventies, but at some point in the last few years I realized that my time with them is limited. Many of my friends have already lost their parents, so last night when I tucked them into bed, and I mean that literally, I felt pretty lucky. My dad was already laying down, and I finished helping my mom into the bed, covered her up, and turned off the lights. Oh, and I offered to read them a bedtime story, sadly they declined. For me, it was a moment I won’t forget. Coming full circle.  Role reversal at its finest.

In the wee hours of the night she called from the bedroom in a small voice….”help!” I stumbled out of bed to assist her in the journey to the bathroom, reminiscent of the kids’ younger years,  but for her I am a spotter of sorts. As I walked behind her to make sure her legs didn’t go out on her and held  on to a safety belt wrapped around her chest, she pushed her walker across the carpet while comparing the pile to a field of corn. Her arms were weak and it was tough work. We had to take breaks along the 30 foot trip for her to catch her breath, yet she was also impatient to get to the destination. In her rush, she was a terrible driver. Banging the walker into everything, she failed in her mission to allow my dad to sleep and she giggled all the way. She’s pretty cute in the middle of the night, making me laugh, and unknowingly saving herself just like a child does. When she starts giving me step-by-step instructions for a menial task today, I will remember those late night antics.

I will not let the little things get to me.  Instead, I will pick the moments  I never want to forget. These  are the memories I will treasure when they are gone.

Will you do the same?  “How fast are you going?”

 

 

I am a Teenager Stuck in a Middle-Aged Body

I am 16 years old at heart, but I am stuck in a middle-aged body.  I may not wear bootie shorts and crop tops, every calorie I eat goes right to my hips, and can’t dance to save my life, but in my heart and soul I am still a teenager.

There is nothing more satisfying than sleeping in on a Saturday morning, and a weekday sleep in makes me giddy. I prefer to stay up late at night, and even if I didn’t, I have a hard time going to sleep at all, much less early. My body, however, prefers not to hang out at a movie, restaurant, bar, or party into the wee hours. It would rather plant itself firmly on my bed in the comfort of home, with my husband next to me, and the dog curled up under a blanket at the bottom of the bed.  I am a teenager stuck in a middle-aged body.

I will never fill my closet with black and beige, and I refuse to wear “mom jeans.” There are certain styles of tops I wouldn’t touch with a ten foot pole, and I was once told (by a slightly older friend) that the cute brown and pink hoodie I was buying looked like it was for someone younger. Recently, I was at a shoe store and the sales associate took me over to the clunky, white, walking shoes. My body was suddenly (and horrifyingly) taken over by a rude teenager who shouted out, ” I’m not wearing those ugly things!” I spent the next 10 minutes apologizing for my alter-ego. I am a teenager stuck in a middle-aged body.

When my husband goes out-of-town for work I sleep with a stuffed animal  that we got while on a date night. We were at Build-a-Bear and he pulled all the cloth hearts out of a large tube and put them back in the top until he got to the only one we could find that said “I Love You” on it.  I won’t change the sheets on the bed until he gets back, and before he leaves I change my jammies every night for a few days so I have several pairs to wear while he’s gone that I have worn with him by my side. If those get dirty, I resort to his t-shirts. He is my movie star. I am a teenager stuck in a middle-aged body.

A few years back, I was driving my son and a friend’s daughter to school, we were talking about a specific person and I said, “She’s OUR age.” I was a 40ish year old woman talking to a 16-year-old girl. I am a teenager stuck in a middle-aged body.

Although I appreciate many genres of music spanning over a number of decades, I will also listen to (and enjoy at a frightening level) the music my pre-teen and teen listen to. Some songs I will play over and over, never tiring of them. I will sing along, and may even dance. If only the dance moves matched the age of my heart and soul. I am a teenager stuck in a middle-aged body.

I would rather feel young at heart, with the knowledge and experience of a seasoned adult than be 16 again. Being a 40-something kid has plenty of advantages. The most important being an appreciation of and love for life.  I’ll take being trapped in this middle-aged body any day of the week. It has been through many trials and tribulations, and it has made me who I am today.

 

 

 

 

 

Why Me? Why Us?

There have been times over the years when I have said “Why me?” “Why us?” Why did this happen to us and not somebody else. Sometimes it just seems that no one else has the same misfortune. I know that isn’t true, and our situation could be much worse, so I don’t dwell for long. I thank God that it isn’t, and for the blessings He has given us.

A majority, if not all, of these events have been medical in nature. My health, and the health of my family. Severe allergies as a child, Crohn’s at the age of 29, which progressed at an alarming rate, cataracts at the age of 32, removal of my colon at the age of 33. Most recently, the Essential Thrombocythemia diagnosis at 42.

The last few years have been no exception to this question. It has floated in and out of my brain, off and on, for months, but after a few moments of self pity, I remind myself of our blessings. This time, though, it was the health of our children.

In 2014 my daughter was bullied, as I wrote about in the post titled, “Until the Scars Fade” (http://superfiveshanghai.com/2015/09/20/until-the-scars-fade/.) At the time, a number of the parents who learned how she attempted to cope were scared of her. They didn’t want their children to be around her. Their ignorance on mental health astounded me. These were well-educated individuals, who must have known that depression isn’t contagious. This is a 10 year old child we’re talking about. She was literally shunned. She had left for the school year and was being tutored, while receiving therapy, and I was encouraged NOT to bring her back for any school functions, so as not to upset other parents, while the bully continued in school with no repercussions.

It has taken two years to be able to take a deep breath. To feel like she is back on track to health. From the outside, it is not apparent. No one else would know what she has been through, and the resulting depression she experiences. No one would know the struggle it has been. As a parent, it has been stressful and heartbreaking. Why my baby girl? Why does she have to deal with this?

Last spring, my oldest son, who suffers from ADD, had some serious anxiety issues. This had never appeared to be a problem before, but it escalated quickly. He was working his first job, taking a few too many college classes, and the pressure and responsibility overwhelmed him. He has always been very independent, and doesn’t like to ask for help. Up until recently, he preferred that we didn’t. We knew he was skipping some classes, and calling in to work, and we had decided that it was time for him to learn the hard way. We had no idea it was due to anxiety until the end of the semester, when he finally told us. After four months of keeping it to himself, he finally released himself from carrying the burden alone. The semester was a bust, and he left his job, but we could, and would, help him.

He spent seven months after the failed-semester ended, in twice-a-week therapy, having medication adjusted, and spending hours and hours in his room. It was, once again, heartbreaking to see one of our children suffering. We spent most of 2015 worried that he might never come back up for air, while his therapist told us it would just take time. She had enough faith for all  of us. She was right. In November, he got a new job, and he started classes in January. He comes home from work happy and talkative, something we have rarely seen from our quiet boy. He goes to class, and has been getting high A’s. Once again, I feel like I can take a breath.

After the events of the last few years, I look for ways to spread awareness about mental illness, and mood disorders. I need to do more. Obviously, I have written about some of it in the blog. I hope that readers will share my posts to spread the word. My Facebook page, Sunrise Strong-Mood Disorder Awareness and Acceptance, is a another step, but it is not enough. As stress at home continues to decrease (fingers-crossed and a bunch of prayers), I hope to have time to find other ways to spread awareness. Maybe that’s why……..why it’s me, why it’s us.

“A Storm’s a Brewin'”

We have had a house guest this week. A nasty and violent visitor reeking havoc where it is not wanted. We have been free of its wrath for several years. I guess our time was up. Stomach flu, we abhor you.

Bill stayed home Tuesday, to keep tabs on me…..from a distance whenever possible. I had spent the night with the porcelain prince, and although he proved useful, I did not ask for, nor want, the date. It had been years since I had spent such time with him, and hope it’s years before we meet in this manner again.

Shortly after 9am, Bill came running to the bottom of the stairs in concern. The visitor was raging again. Loudly. Once he found me resting peacefully, he started searching for the source. The youngest child was at school, the sleeping, middle child,  was fine, and the oldest was at chemistry class….or not. Ethan had made it to school, taken a quiz, turned in a paper, and told his professor that he was ill and would have to make up the lab. He raced home at break-neck speed, pulled into the driveway, grabbed his bag, opened the car door, dropped down to the ground, and decorated the front lawn with his breakfast. He was driving my car.  Bonus points for keeping it outside. Number one child, was the second victim.

It was at this point that Bill and child number two started to bond in brotherhood, to protect their right to health.  The Clorox wipes and Lysol came out. Lines were drawn. We are here. You are there. Do not cross this line.  They went to the raw juice bar, and downed immunity ginger shots together, then questioned their sanity as the intense spice burned its way down to their bellies. They each had an extra large green juice chaser, cooling the flame,  and cleansing the body, in hopes of further protection. They swore their allegiance to health. They would not fall.

Yesterday, for whatever reason, after 24 hours of reprieve, it felt safe. I don’t know why I thought it was okay to take a deep breath, but I did. I continued washing the linens, towels, and bacteria-laden clothing, optimistic that a full family infection had been avoided. Unfortunately, as I walked past Brennan late in the afternoon, he angrily mumbled….”a storm’s a brewin,’ and I blame you.”  Dad walked in minutes later, pumped his fist in the air as he saw Brennan, still residing in the land of the living, and shouted “Solidarity, son! You’re still on the island!” He was answered with doubtful head shakes. As I write this, the second child is the third to go down.

There were only two left on the island. Father and daughter allied. Fist bumps ensued. Who would be the last family member standing? How long would they last? Realization hit. The allies became competitors.

At 3:12am, unusual activity is heard from the bathroom, and lights are being turned on. From a dark bedroom the sounds of the third child…..”Hey, Dad?! Are you off the island?! I imagine a fist pump may have taken place n that dark room. The fourth has succumbed. Survival of the fittest.

Carleigh is still going strong. I fear she may be dripping in germs, but she has a reading at mass today, and she has no signs of illness. May God protect her and her classmates from our unwanted visitor, and me from their parents, if things go awry.

 

 

Hiding in the Bathroom

Let’s face it. We’ve all done it at one time or another. You just can’t handle it anymore, and you head into the bathroom for a few minutes of peace and quiet. It’s one of the few rooms in the house where you can lock the door, and convince all but the smallest of children, that it’s best to give you your privacy.   If your lucky, you can sneak in with a glass of wine and a good book. Turn on  the shower, and  up the music, to block out noise (and claim you couldn’t hear, if called), and you never know, you could get mommy-alone-time for…..and I may be overestimating……….10 minutes?!

For whatever reason, men do not have the same problem as us. No one follows them and sits outside the door. No one screams from another room, begging for their attention.  If this does happen, they ignore it, and it goes away. The persistence just isn’t there if it’s not the mom.  In my house, the men use this to their advantage.

Bill goes into the bathroom every morning to get ready for work. He takes his iPad with him, and listens to music, and reads his book. I’m pretty sure he has no intention of spending a long time in there, but he gets distracted. “I’ll just finish this chapter.” “Listen to _______ song.” “Hey! That reminds me of _______song.”    I have to strategically plan my bathroom usage around this habit. Do I go in before him? After him? Or do I just go in once I hear the shower water go on, and screw the privacy rule?!

When Brennan was little, if a situation came up where he was asked a question that made him feel uncomfortable, he would say “I have to go to the bathroom, ” and sprint away from said conversation. As he’s grown, it has continued in some form or another, and although he doesn’t actually leave conversations anymore, he won’t hesitate to avoid them before they begin. He uses this method to escape unwanted tasks, as well. When it comes time to unload the groceries, or put them away……nature calls. Time to vacuum……going into the bathroom may result in parents forgetting for a few more hours, and due to the fact that I can be absent -minded…it works!

Ethan doesn’t even try to hide the desire to flee. If I am going into his room to ask him questions he doesn’t want to answer, and he feels he can’t escape the conversation with half-hearted responses, he will push past me to relocate to the bathroom, and  will hide for as long as it takes, reading, or watching videos, until he feels the coast is clear. He is a stubborn kid, and can outlast the best of us, so this tactic works amazingly well.

After years of finding safe haven in this room, the boys have found that they LIKE hanging out in there, even when not avoiding the wrath of mom. Overall, I don’t mind, but even though we are lucky to have two bathrooms, we do not have an endless supply of hot water. There are nights I hear the boys’ bathroom door close, and I make a beeline for the upstairs bathroom, so I can take a HOT shower. Who would have thought that I would have to worry about my teenage BOYS  bathroom time more than my daughter’s?! No one warned me!

As I sit here writing this post, Brennan is in the bathroom, sucking every ounce of deliciously toasty water out of the hot water heater. He should be out in an hour or so. I will eventually go bang on the door and ask him to save me some hot water, and later I will take a less-than-satisfying lukewarm shower, while the family finds ways to need me, immediately……..if not sooner.

 

The January Vacuum

It pulls everything out of me, and I feel like a deflated balloon. I struggle to function. Hiding in a corner like that lone dust bunny, just trying to make it through the storm. Closer to March, closer to spring. January sucks. It sucks everything out of me.

In Michigan, it is a cold, wet, gray, month.  Long gone are the sounds of college football blaring from the TV, and fall breezes wafting through the open windows. The trees are bare, and the neighborhood children have moved their play inside, away from the winter chill. The holidays are over, and it is too far to the next. There are more overcast days than blue sky days, and warm weather is too many months, or too many miles away. Going out to do errands, on wet and sloppy, or slick and icy roads, is unappealing. Crawling into bed with a good book, or a movie, and a hot cup of coffee, is much more so. Then again, being cooped up brings me down too. I waffle between the safety and comfort of home, and raging cabin fever. I have often felt that there is no way to win the battle of January, at least not in my world.

For years, I let January swallow me whole, but recently I have tried to find ways to overcome the vacuum. We have bought light therapy lamps, and when we consistency turn them on while waking up, they do help. On those days I manage to drag my body out of the warm bed, early morning workouts go a long way to making me feel better, as well. Vitamins. Music. Essential oil aromatherapy. I’ll get there. I’ll find the right mix, and eventually, we’ll move to a sunnier state. For now, I continue to fight for good, for light, and hope for the renewal of life outside my window.

A Letter to Our Adopted Christmas Family

I don’t know you, nor do you know me, but you have been heavy in my heart since I heard. This December, during a time that should be joyful and merry, as we celebrate the birth of Jesus, you have lost a loved one. A mother, a daughter, a sister. It was sudden, and tragic, and my heart breaks for you.

She left you precious gifts, her two young sons, Jay, and Em. Since Jay is two years old, he may grow up with vague memories of his mama, but Em, at five months, will not. They will grow up knowing their mom, through your eyes, their loving family. They may never again feel their mom’s arms wrapped around them,  at least not on Earth, but they will have you, providing endless love and support.

I have had you on my mind constantly this last week. I have seen a picture of mom, Jay, and Em, and my heart breaks for those beautiful baby boys. For their grandma who has lost her daughter, and the rest of the family as well. Christmas will never be the same for you. I hope you can find peace knowing that she is safe in Heaven, and will be watching over the family from above.

You are beginning a journey that you never expected. It will take a level of strength that you may not even realize you possess. Those boys will not forget the sacrifice that you made in raising them, and you will say it was not  a sacrifice. It is what loving families do, and you could never imagine NOT doing it. Make no mistake, it is a sacrifice, but one you will love and cherish forever. Their mama would be proud of you, and can be at peace knowing her babies are in your hands..

When I heard from my friend, when I heard what had happened, I jumped at the chance to help. We, and several of our neighbors, buy gifts for families experiencing difficulties during the holidays. We have gotten together for breakfast on Christmas morning for years, and instead of exchanging gifts, we give to others.  It is one of my favorite December activities. I love the shopping trip, picking out things for children to open on Christmas morning, hoping to bring them smiles and joy. This year is different, though, it feels more personal, it hits closer to home, I suppose because my friend actually knew your loved one, and that it comes in the wake of a devastating accident. One that could happen to any one of us, at any moment.

It is a small act, I know it’s not much, but I hope it helps a little in this difficult time. I wish I could do more. I wish I could take away the pain you are feeling. I pray you find a few moments of happiness this Christmas, whether it’s watching the children open gifts, reminiscing about the good times with the boys’ mom, or merely being in the comforting company of family.

You are in the thoughts and prayers of many this holiday season. May God bless your family with peace and love this Christmas, and always.

 

 

 

 

What I learned from my Crohn’s Disease

Part III –  Repost for Crohn’s and Colitis Awareness week. Spread the word.  Share to increase awareness. There is hope!

As I have said before, I have Crohn’s Disease. It has been in remission for 12 years, but from a year after my diagnosis in 1998 to August 2002, it was like a wildfire reeking havoc on my body.

I spent three years, from the summer of 1999 after Brennan was born, until my major surgery in 2002, fighting for my life. I didn’t realize it at the time. It snuck up on me in little increments, and before I knew it had overtaken my body. Specifically, my large intestine. I was on a severely restricted diet, and took handfuls of medication and vitamins. I was constantly in doctor’s offices, or emergency rooms. I had raging fevers, higher than you would think a person could survive. Higher than the kind that send parents into panics. I had a racing heart, even at rest, lost partial vision in my eyes, and fought a staph infection in my leg for a week in the hospital. I never had the stomach pains that many people with Crohn’s do, but I probably spent more time in the bathroom than the average person will spend in their lives. My weight went down to 88 pounds.

In the end of December 1999, after spending the holidays (which are crazy busy during NORMAL circumstances) at my grandmother’s and Bill’s grandfather’s viewings and funerals, I got what appeared to be the flu. It went on for a week or so, and didn’t seem to be getting better. As lay down for a nap one day, I said a prayer. I asked God to give me a sign. To let me know if I should go to the doctor after the New Year, or if it would go away on its own. When I woke up, I had little insect bite-like bumps all over my body. I will never forget that moment. We are a quietly religious family. I have always been a believer, but this was a pivotal moment in my life, my belief, and love of God. I spent the next two weeks in the hospital.

I remember, sometime in the second or third year of my Crohn’s, being exhausted. Tired of the constant battle. Laying on the bed, getting ready for another nap. I, again, said a prayer. I asked if I would be feeling better the next day, and begged that I would. Within a minute or two, and I kid you not, the phone rang a strange double ring. It reminded me of the way my phone at work rang when I was getting an interoffice call. When I picked it up, it was an operator recording. “I’m sorry, your request cannot be processed at this time. Please hang up and try again later.” I ran downstairs and asked Bill, who was sitting on the couch, if he had heard the phone ring. He said yes, but didn’t notice the weird ring. Another moment I will never forget. I am still quietly religious, but much more so. I believe. No one could ever tell me otherwise.

I fought having the surgery to remove my colon for a long time. I was too young to have an Ostomy bag. I was only in my early 30’s. How could I deal with that for my entire life?! I finally gave in to myself, it was my choice. I wanted to be there for my boys, and I was just too ill to be the mom I wanted to be. When the surgeon went in for my pre-op colonoscopy, he couldn’t even complete it due to the swelling. I had put the procedure off, and if it had been done sooner I’m sure they would have told me how dire the circumstances were. I’m glad I made the decision myself prior to that. I’m glad that I did it for the love of my family. In the end, it would turn out to be so much more than that.

That surgery saved my life. Literally. It was that bad. I can now eat anything I want, I take no medication for Crohn’s, and am back to a more-than-healthy weight. And I am LIVING. Living a life I wouldn’t be, if not for said surgery. I am living a life I would not be, if not for Crohn’s Disease.

I have learned to appreciate the little things that so many take for granted. The blue sky, white clouds, green trees. The contrast between them, and the beauty of it. The breeze. The birds. The smell of fresh air.

I have learned not to take my family and friends for granted, and to catch myself when I think that I am. To take care of them, as they took care of me. To love them with everything I have. To look to them for strength when I need it, and to give strength and support to them when they do.

I have traveled farther out of my comfort zone than I ever thought I would. If not for Crohn’s we would not have traveled abroad, adopted our daughter, or lived in China. Before Crohn’s my life was ruled by fear of the unknown. After Crohn’s, by the spirit of adventure, and a love of life.

I have walked on the Great Wall of China, and stood before the first emperor’s Terracotta Warriors. I have trekked through the rainforest in Langkawi, Malaysia, and floated through the mangroves. I have basked in the hope of longevity from the waterfall of the Pure Water Temple in Kyoto, Japan, and walked the Nightingale floors of Nijo’s Castle. I have explored the streets of Ho Chi Minh City, and traveled through the Mekong Delta. I have walked the beautiful beaches of Vietnam. I have zip-lined through the trees in Thailand, and fed an elephant bananas. Right into that giant mouth. I have been to the Demilitarized Zone in South Korea, and I have stood in North Korea, in the MAC (Military Armistice Commission) building.

Through my Crohn’s Disease I learned how to live. How to love. How to learn. But I’m not done. I have so much more to see, so much more to experience, so much more to love, thanks to my Crohn’s Disease.

Second Chances

Part II……  Repost in honor of Crohn’s and Colitis Awareness week. Share the  post, raise awareness.

The first thoughts that crossed my mind, while I was recovering in the hospital, were very basic. How do I dress now? Can I wear the same clothes, or will I have to wear overalls, or baggy dresses, for the rest of my life? Will the bag show if I wear jeans? Will I ever wear a bathing suit again? Will people know by looking at me? Am I going to have a perpetual bump on my front, right side? How do I take care of this new “appliance?” All of these things were a little scary for a 33 year old woman. It felt like these were things I shouldn’t have to worry about at my age; like I was robbed of some of my younger years.

Once I returned home, however, I discovered all the positive results of the surgery. I required no more medication to control my disease. It was finally in remission. I didn’t have to know the  location of each public restroom before entering a store or restaurant. The innumerable foods that I hadn’t been able to eat for four years were ecstatically served to me by my mother who was such a blessing and a help during those years.  I could easily hide the Ostomy bag. I didn’t have to dress differently, and if I didn’t choose to tell someone, they had no idea that I was any different then them. Finally, my kids. I could be there for my kids. I could help at school, take them to the park,  and play with them, without having to do it while lying on the couch.

Over time, I realized how strong this experience had made me. If someone had asked me if I could go back in time and change things; if I had never had Crohn’s at all, would I do it?  The answer was “NO!” Crohn’s made me who I am today. If not for this disease, I would not love life, the little things and big, in the way that I do now. I would not notice God’s beauty in so many everyday ways, and appreciate them on a daily basis. I would not have stepped out of my box to do things that I was not comfortable with, but I did……..things I never thought I would be able to do.